Welcome to genetube – a space dedicated to shaping fresh, informative, surprising and shareable bite sized insights about DNA and genetics. Not for profit; just for humankind.

About

There are thousands of films out there that can give you the science of DNA, genetics and genomics, we are creating films that do something different.

Our aim is to help shape and inspire everyday conversations that, whilst still rooted in the science, resonate with people. We want to know how to make ‘genomics’ click for people who may not know anything about it yet.

The whole point of doing this is because genomic technology is fast becoming part of routine healthcare, i.e. information from our DNA is being used to predict, diagnose and manage health and disease. Whilst you may think –is this really relevant to me? It actually is. The thing is, DNA is a family affair – so whilst you may not be planning on using healthcare services in the near future, people you are related to just might. Information they learn from their DNA could be relevant to you too. We think everyone deserves to have a headsup on what genomics is all about.

Each film we have created has a scientific insight at the core of it; this is based on information we gathered by interviewing members of the British public (social science academics done by Dr Anna Middleton). The themes from these interviews were developed, explored and overlaid with a creative story (communication industry expertise from Julian Borra).

We now want to know if the films we’ve created help DNA, genes and genomics become a more ‘social’ concept – i.e. something that everyday people feel they can relate to.

Newsfeed

Channel 4 news article on Genomethics survey

Channel 4 news ran a newspiece in 2014 on our research all about what people want to know from their genes; together ... Read more

Legal duty to share genetic information? ABC v St George’s Healthcare NHS Trust

Guest blog by Dr Vicky Chico, Legal Consultant, Society and Ethics Research Group, Wellcome Genome Campus, Cambridge Read more

Your Genome, Your Research Agenda

On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the research ... Read more

DNA and Big Data: be part of the conversation

What are your thoughs on sharing your DNA data with others? Read more

Talking about genetics with children? Use Harry Potter

This guest blog comes from Jon Roberts again; doctoral student from Kings College London and Wellcome Genome Campus. See Jon’... Read more

Partners

The research is being conducted and managed by Dr Anna Middleton, Principal Staff Scientist (social science and ethics), Wellcome Genome Campus, Cambridge, UK. Anna is an experienced social scientist who designed this project. She is gathering the attitudes, beliefs and understanding about genetics from members of the public. This is being done in two stages: firstly via Focus Groups and then via survey data gathered through this website.

The insights gathered from the Focus Groups were discussed extensively with Julian Borra, creative director from Thin Air Factory. Julian added a more creative, ‘emotional’ framing and flavour to the outcomes from the Focus Groups and overlaid a narrative grounded in more ‘social’ concepts. We want to know how to start a conversation about genomics with people who know nothing about genomics. These animations are our first evidence-based attempt to do this. The experience gained from this project will be used to guide some of the public engagement activities for Genomics England and their work on the 100,000 Genomes Project in the National Health Service.

The Steering Group that guides this project includes: Vivienne Parry (Genomics England), Katrina Nevin-Ridley (Genomics England), Dr Julian Rayner (Wellcome Genome Campus), Dr Amy Sanders (Wellcome Trust).

Funders

This research is funded by a joint partnership between the Wellcome Genome Campus, Wellcome Trust and Genomics England and has received Research Ethics Committee approval from the West Midlands Solihull Research Ethics Committee.

Contact

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